Travelling in a wheelchair (1/2): Planning your trip
Budapest. A Saturday in June. Two Hungarian ticket inspectors have already been trying for almost ten minutes to lower the platform on which I am stuck with my wheelchair in…
How a chronic disease becomes routine
In a phone call with a friend a few weeks ago, when we were discussing my health, I explained to her that my chronic disease has become part of my…
Back to…the hospital
Even if the hospital is not an obligatory moment for all chronic diseases, it is often part of the equation when one falls ill, if only at the beginning to…
Working with a chronic disease: Mission impossible?
Whether I could work, how, how many hours, under what conditions, was a big concern for me in the early years of my studies. Just before I became sick, I…
Learning to set priorities
The week comes to an end. I take a moment to settle down, reread the week, take note of how things are going and see what I had planned, what…
Accepting to receive the help you need
Physically fit, good at school. That was me. Before the illness. At that time, I rarely asked for help, but rather I gave it to others, be it bw explaining…
15 activities for when you are not in good shape
Like everyone else, I don’t like days when I’m not well and bedridden by fatigue and the symptoms of my chronic disease. I know that it is inherent to a…