Top 6 things I’ve learned from twelve years of chronic disease
Twelve years that my life has changed dramatically, for the worse, but also for the better. Twelve years of chronic disease, with ups and downs, with more or less (but…
Patience, always
Before I became ill, I had always found myself to be quite patient, whether it was waiting for a bus or a result or any other situation where I had…
In the phases when things get better…
In a chronic disease, there are also phases when, fortunately, things get better, when the disease is hardly felt at all, or at least not too much. After several months…
Diagnosis, now what?
There is a time before the diagnosis and a time after. Sometimes it will have taken months or years of searching, trial and error, and uncertainty to get there. Although…
How to cope with a chronic disease? Cynicism, realism or optimism?
Optimism, realism, cynicism, terms that no doubt seem quite contradictory and yet often coexist in a chronic disease. Cynicism as an undoubtedly logical and inevitable consequence of the disease. Realism…
When tiredness prevails…
It’s morning. You wake up and for a moment you hope. What exactly? It’s not always clear. That the illness is over. That the pain is gone. That you are…
15 activities for when you are not in good shape
Like everyone else, I don’t like days when I’m not well and bedridden by fatigue and the symptoms of my chronic disease. I know that it is inherent to a…
Celebrating the wins
Have you recently been out shopping, even if you were exhausted from your chronic disease? Or have you gone to school or work, even though you were in pain and…